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West Lancashire MP Rosie Cooper has joined a cross party group of MPs in lobbying the Health Secretary Jeremy Hunt and Business Secretary Sajid Javid asking the Government to expedite access to ground-breaking drugs for people with cystic Fibrosis in England.
Questions over the long-term value, impact and cost-effectiveness of Orkambi have so far restricted its use on the NHS, but its manufacturer Vertex Pharmaceutical have submitted fresh proposals to NHS England and NICE last month.
The letter to the Ministers calls for a meeting including with the cystic Fibrosis Trust to discuss this matter that is of the utmost urgency to the thousands of people and families that await progress.
Dudley North MP Ian Austin has been a leading figure on Cystic Fibrosis in Parliament and MP Rosie was keen to support this on behalf of West Lancashire residents.
Rosie Cooper MP said:
“I was eager to add my name to this letter calling on Jeremy Hunt and Sajid Javid to provide greater access to drugs which could offer serious improvements to people with Cystic Fibrosis.
“Access to Orkambi and other ground-breaking drugs that support people with Cystic Fibrosis is important and could help many families here in West Lancashire.”
West Lancashire MP Rosie Cooper has joined a cross party group of MPs in lobbying the Health Secretary Jeremy Hunt and Business Secretary Sajid Javid asking the Government to expedite...
Rosie Cooper MP highlights plight of smuggled puppies imported to fuel the Christmas puppy trade
West Lancashire MP Rosie Cooper joined a host of invited MPs and Peers at Dogs Trust’s annual House of Commons reception.
Dogs Trust, who are the UK’s largest dog welfare charity and famously coined the slogan ‘A dog is for Life, not just for Christmas,’ asked MPs for their support in the fight against Puppy Smuggling.
Dogs Trust has been investigating the problem since 2014, and through three undercover investigations has found that unscrupulous breeders take advantage of, and profit from issues with the Pet Travel Scheme (PETS). As a result, underage puppies are being illegally imported into Great Britain from Central and Eastern Europe, and sold to unsuspecting members of the public.
Over the last few months, nearly 100 dogs were seized by APHA (Animal and Plant Health Agency) at the borders, as dealers take advantage of the increased demand for puppies in the run up to Christmas. Dogs Trust has found that of the puppies who do survive the appalling conditions they are forced to travel in, many require emergency treatment – with dehydration and malnutrition among the horrific conditions they suffer from as a result of travelling for thousands of miles in cramped conditions, with no food or water.
Thanks to quick intervention and expert care from the Puppy Pilot scheme, Dogs Trust has been able to save 94% of the puppies coming into care. 6% sadly passed away. Dogs Trust has also seen examples of heavily pregnant dogs coming into Great Britain, showing that breeders are stooping even lower to flout the system, with no regard for the welfare of the mum or her puppies.
Dogs Trust has warned that although there is a rise in puppies illegally imported during the festive season, illegally imported puppies is a huge issue all year round. The organisation has issued advice to help anyone thinking of buying a puppy, to know what to look for, in a bid to stop buyers unwittingly fuelling the trade. The charity has also issued a plea to anyone thinking of getting a dog, to do their research or consider rehoming instead.
During the event, MPs were informed of the horrendous conditions puppies are smuggled in, with Dogs Trust reporting extreme cases of puppies smuggled in baskets covered with cling-film and crammed in suitcases.
West Lancashire Rosie Cooper MP said:
“I’m very pleased to support Dogs Trust in raising awareness of the plight of illegally imported puppies, who suffer the most harrowing of journeys at the hands of these unscrupulous dealers.
“It’s imperative that the Government takes immediate action by enforcing proper checks at the ports and on-the-spot fines to deter these breeders and dealers, as well as introducing revised legislation as a priority when the UK leaves the EU.
“We really hope this will help to effectively regulate pet travel.”
Adrian Burder, Dogs Trust CEO, said:
“It’s a shame that we still have to remind people of our slogan, ‘A dog is for Life, not just for Christmas’ nearly 40 years on from its creation. We always encourage responsible rehoming, but as we’ve seen, dealers will go to great lengths to dupe innocent people, making it increasingly difficult for people to spot an illegally smuggled puppy.
“Over the next 12 months, we will continue to push for proper enforcement at UK borders. We will also continue our Puppy Pilot scheme, which rescues puppies seized at borders, funds their quarantine and rehomes them responsibly. So far, this scheme has saved more than 600 puppies.
“We can’t thank Rosie Cooper MP enough for her support, and we look forward to continuing to work together to tackle this issue, and make some much needed improvements in 2018 and when we leave the EU.”
Share Dogs Trust advice on buying a puppy responsibly, and sign up to email your MP to support the fight against Puppy Smuggling
Dogs Trust is the UK’s leading dog welfare charity and has a network of 20 Rehoming Centres in the UK and one in Dublin. The charity cares for over 15,000 stray, unwanted and abandoned dogs each year.
- Dogs Trust has a non-destruction policy, and will never put a healthy dog to sleep. The charity is working towards the day when all dogs can enjoy a happy life, free from the threat of unnecessary destruction.
- Dogs Trust coined the phrase ‘A dog is for Life, not just for Christmas’ in 1978.
- The Pet Travel Scheme (PETS) is a set of EU rules which allows animals to travel between EU countries without having to go to into quarantine. Dogs travelling into Great Britain under PETS must be 15 weeks old, microchipped, vaccinated for rabies, treated for tapeworm and have a pet passport.
Rosie Cooper MP highlights plight of smuggled puppies imported to fuel the Christmas puppy tradeWest Lancashire MP Rosie Cooper joined a host of invited MPs and Peers at Dogs Trust’s...
West Lancashire MP Rosie Cooper has leant her support to children and young people with bladder and bowel issues at the launch of a new report in Parliament.
MP Rosie, who serves as Co-Chair of the All Party Parliamentary Group for Continence Care endorsed the report and delivered the keynote speech at the launch introducing speakers who told of their experiences.
The report ‘It happens to me too’, found that support for the nearly 900,000 children and young people in the UK with bladder and bowel issues is inadequate and needs to be addressed urgently.
The report highlights the significant stigma that exists around bladder and bowel issues. Almost two thirds of young people said they would be embarrassed to see a doctor about continence issues resulting in a significant impact on their day to day lives. Despite the burden on the lives of children and young people, evidence shows a lack of early intervention in diagnosing and treating bladder and bowel conditions and the risk that young people are not supported through the transition from child to adult services.
Introducing the report, Rosie Cooper MP said:
“I am well aware of the challenges facing children and young people with bladder and bowel issues. This is an issue we haven’t fully got to grips with in the UK by any means, it is believed there are over 21 million people in the UK who suffer with bladder and bowel control problems, 900,000 of whom are children and young people.
“There is often a stigma associated with bladder and bowel problems, which impacts on the ability of children and young people to interact socially and live as independently as possible in their local communities. Children and young people face further challenges in gaining access to practical advice that explains what they should expect from their local health and social care services.”
Recommendations in the report include:
- Swift implementation of Excellent in Continence Care (EICC) to deliver a clear framework for delivering high quality bladder and bowel services including knowledge over patient rights and access to services.
- One community-based service covering day and night time wetting, soiling and constipation problems.
- Local services should seek to identify people with continence issues who may be at risk and offer a comprehensive assessment to look for ‘red flags’ indicating an underlying condition.
- Bladder and bowel services for young people should employ a paediatric continence nurse specialist.
- Local pathways should be implemented, through which healthcare professionals can refer young people on to other services such as specialist care, social services or mental health services if appropriate.
Following the event Rosie Cooper MP commented:
“We hope launching this report will remove the social stigma of bladder and bowel issues, reassure young people that their problems need not prevent them from achieving their life goals, as well as offering guidance and advice on seeking help. This report will be the first step in helping to improve the lives of the children, young people and their families affected by bladder and bowel problems.
“More must be done to ensure that the support that is needed to allow them to get on with their lives and realise their full potential is available to them, no matter where they live. I look forward to working with the groups involved in the report to take forward its recommendations.”
Chair of the Paediatric Continence Forum (PCF), Dr Penny Dobson MBE said:
“Many children and young people with bladder and bowel problems suffer in silence, and whilst help is out there it can be difficult to navigate.
“The social stigma that exists around bladder and bowel issues prevents so many children and young people from coming forward and seeking the help they so desperately need. Some suffer in silence for years, not knowing that solutions exist. Many don’t know who to turn to and sometimes fall victim to bullying at school or on social media. The message for them is clear - there is no need to be ashamed.”
- The report is available online here
- The report was developed in partnership with the Paediatric Continence Forum (PCF), charities ERIC The Children’s Bladder and Bowel Charity and Bladder & Bowel UK, the University of Bristol and Coloplast.
- The Excellence in Continence Care (EICC) report is available here
West Lancashire MP Rosie Cooper has leant her support to children and young people with bladder and bowel issues at the launch of a new report in Parliament.MP Rosie, who...
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