Sue Ryder was joined by West Lancashire MP Rosie Cooper alongside Minister of State for Care and Support, Norman Lamb MP, Shadow Health Secretary, Andy Burnham MP and over 170 guests to celebrate 60 years of delivering incredible care and launch its campaign, Dying isn’t working.
At the event Sue Ryder’s CEO, Paul Woodward, explained why dying isn’t working:
“After 65 years since the establishment of the NHS, people still have unequal access to quality end of life care - your diagnosis, where you live, or who your doctor is shouldn’t pre-determine whether or not you have a good death. It is totally unacceptable that individuals and their families remain unsupported at the most life-changing and emotionally challenging time. We want to change that.”
“Everyone should be able to choose the care that they want at the end of their life. Our campaign is calling for fair and equal access to end of life care that enables people to choose the care they want that is tailored to their needs and wishes.”
Sue Ryder’s Dying isn’t working campaign is based on evidence from the charity’s recent reports, Ways and Means (published on 19 June), looking at barriers to accessing end of life care, and A Time and a Place (published on 9 July), exploring what people want at end of life. The original polling conducted for A Time and a Place highlights that whilst 62% of people said they wanted to die at home and 78% said pain relief was a top priority for them, only 27% felt that home was a place where they could be pain-free during their final days. These findings show that rather than making positive choices about end of life care, people would make unacceptable trade-offs between dying in the place of their choosing or receiving the care that they want.
West Lancashire MP Rosie Cooper speaking after the event said:
“People with life-limiting conditions and their families are looking to be treated with care, dignity and humanity during this difficult time. This is exactly what they get through the Sue Ryder hospices across the country.
“From the doctors to nurses to care staff patients received the care and emotional support they need and deserve. It is also important to recognise the invaluable contribution from the team of volunteers. Everyone working together to ensure good quality end of life care in which the patient come first.”
To read the insights and recommendations from both reports and for more information on the Dying isn’t working campaign, please visit www.sueryder.org