West Lancashire MP Rosie Cooper has joined a cross party group of MPs in lobbying the Health Secretary Jeremy Hunt and Business Secretary Sajid Javid asking the Government to expedite access to ground-breaking drugs for people with cystic Fibrosis in England.
Questions over the long-term value, impact and cost-effectiveness of Orkambi have so far restricted its use on the NHS, but its manufacturer Vertex Pharmaceutical have submitted fresh proposals to NHS England and NICE last month.
The letter to the Ministers calls for a meeting including with the cystic Fibrosis Trust to discuss this matter that is of the utmost urgency to the thousands of people and families that await progress.
Dudley North MP Ian Austin has been a leading figure on Cystic Fibrosis in Parliament and MP Rosie was keen to support this on behalf of West Lancashire residents.
Rosie Cooper MP said:
“I was eager to add my name to this letter calling on Jeremy Hunt and Sajid Javid to provide greater access to drugs which could offer serious improvements to people with Cystic Fibrosis.
“Access to Orkambi and other ground-breaking drugs that support people with Cystic Fibrosis is important and could help many families here in West Lancashire.”